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Heatedmeatballs
joined aug 2020
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6 topics on Heatedmeatballs
+2
Heatedmeatballs
Epilepsy and depression
Do any epileptics on here get interictal depression and if so have you got any tips on how to deal with it? I was diagnosed with tle a couple of years ago and my depression between seizures has gradually got worse and worse. Thanks in advance.
+3
Onehugebopper
I also have TLE and to be honest nothing has helped, they tried me with SSRIs along side my lamotrigine, but neither citalopram or sertraline helped. My neurologist has basically said if they can find the right combo of meds to help me one day be seizure free, then the interictal depression should improve with time if no external factors are triggering it.

However I've only been on AEDs for 6 months (didnt have a TC for a while after the first so presumed i was fine) , and only tried lamotrigine, and tegretol with neither to date controlling my seizures(TC and focal aware). I have noticed though when I'm having more frequent seizures, my depression is alot more intense(mind spirals)
+3
Heatedmeatballs
Thank you so much for getting back to me. I'm also on lomotragine and as my dosage has increased I've found the depression gets worse. I haven't tried any antidepressants yet and have been considering CBT as it's meant to help. I've largely got my TC seizures under control (about once every 6 months rather than once a month) but still fairly regularly have focal aware seizures. I hope you find the balance you're looking for and end up seizure free.
+2
Onehugebopper
Ah I'm glad lamotrigine is working in terms of your tonic clonics but for focal aware seizures I've found only being stoned helps me lol, unless its followed by a bigger seizure, i cant prevent that as of yet. I'm thinking of starting THCV and CBDV plus some cbn, as they have shown promise in animals as anti convulsants. Just a shame there's no funding for a clinical trial for such a thing, so I'm taking matters into my own hands. Also with lamotrigine I've read in some people it can cause massive changes in mood, and actually worsen your interictal depression. In fact that's why I stopped talking lamotrigine in the first place, as when increasing to 100mgx2 a day, I couldn't handle the suicidal ideation. Sorry if I'm oversharing, it's just nice to find someone in a similar boat. I too hope the best for you my friend, and that therapy helps if it's what you're wanting to do, I say go for it. Nothing to lose 🤞.
+3
Heatedmeatballs
I literally cried reading this as it's so nice to know I'm not alone, I've felt so isolated by my epilepsy and especially by the mood swings as I either fuck people right off or get super pissy. My issue like yours started when I titrated up to 100mg 2x a day up until then the side effects weren't too bad. It's made me so depressed I've ended up crying on the bus on the way to work. Also trying to find the right help/answers on the NHS has been a nightmare. Let me know how the thcv cbdv and cbn work out for you and I'll let you know if the CBT helps at all. To be honest I'm fairly resistant to therapy as I'm not sure I want to pick the scab off, too many of my friends have gone down the therapy route and are still in therapy decades later. Wishing you all the best and thanks again. 👊
+2
MedicineMan
Have a look at my Kush 'n' Cookies CBD drops or the stronger FECO 1:1 drops. Have had some great feedback from people who suffer from epilepsy & depression.
My shop is currently closed until I'm back from a break on the 14th, hopefully they can help.
Good luck 👍
+3
Heatedmeatballs
Brilliant I'll have a look once you're back open it sounds like exactly the sort of thing I need to even me out.
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